HHT Registry



  • Are you a patient with Hereditary Hemorrhagic Telangiectasia (HHT) living in BC?

    If so, we invite you to take part in our patient registry at the St. Paul’s Sinus Centre. Dr. Amin Javer and his clinical team are aiming to create a registry of all patients with HHT in BC in order to better understand HHT, and provide optimal care for patients.

    You will have the opportunity to consent to be contacted when new treatments or therapies have been approved, research study participation, as well as participation in support groups. If this interests you, please don’t hesitate to contact us for more information at spschht@gmail.com, or 604-806-9926 as opposed to commenting on here.

    d08248b0-6ec1-4957-860b-38b35257d110-image.png

    Thank you!


Log in to reply