d19dotca last edited by
I'm Dustin. I have Cystic Fibrosis and therefore have complications with my sinuses as we tend to suffer from polyps in the sinuses.
Dr. Amin Javer has performed surgery several years back to get rid of them. I had my first surgery for it when I was younger at BC Children's Hospital by another doctor, so I've had two of them now. I suspect I'll need to get one every several years.
I do daily sinus rinses for keeping things clean until the next time I see Dr. Javer for a "sinus flush" as we call it. It definitely helps and makes it feel great up there for a period of time.
All the best to other patients and non-patients going through sinus complications and surgeries. Hope all is well.
SnottySoul last edited by
I’m Pat. I have Allergic Fungal Rhinosinusitis. There is no known cure but it is felt it is an immunological response to fungus that we breath in the air.
I have had three surgeries in the past five years to clear my sinuses & help control my disease. I too have done special rinses. I am presently in the aPDT (blue light) study as all other treatments have failed. I hope to not just help myself but help others from the data that Dr.Javer & the team collect.
Dr.Javer’s commitment to us patients keeps me going in body, mind & soul. I hope to encourage all of us patients in our journey as you know some days are good & some are not.
I want to brainstorm with other patients to see how we can fund raise for research funds to continue these important studies. Any thoughts send them out!