@snottysoul Hi, I'm new to this forum. Having had C Diff about 12 years ago and knowing about the by-now popular FMTs, this concept seemed an obvious corollary for the sinus microbiome. I googled and found your 2019 mucus transplant study -- though not one study in the US, where I live! I am wondering whether your study has yielded results. Anything published in any journal? Any information will be appreciated! We're all hopeful!
I’m Pat🙋. I have Allergic Fungal Rhinosinusitis. There is no known cure but it is felt it is an immunological response to fungus that we breath in the air.
I have had three surgeries in the past five years to clear my sinuses & help control my disease. I too have done special rinses. I am presently in the aPDT (blue light) study as all other treatments have failed. I hope to not just help myself but help others from the data that Dr.Javer & the team collect.
Dr.Javer’s commitment to us patients keeps me going in body, mind & soul. I hope to encourage all of us patients in our journey as you know some days are good & some are not.
I want to brainstorm with other patients to see how we can fund raise for research funds to continue these important studies. Any thoughts send them out!
I haven't done that myself yet, but I wanted to say I read the article, very interesting stuff. I was also delighted to see Carl Philpott there, he was actually a fellow with Dr Javer at the SPSC and was the gentlemen who along with Dr Javer did my previous sinus surgery. They were absolute gems. So I'd generally trust anything he's saying when it comes to that stuff, at least speaking for myself. :-)