@snottysoul Hi, I'm new to this forum. Having had C Diff about 12 years ago and knowing about the by-now popular FMTs, this concept seemed an obvious corollary for the sinus microbiome. I googled and found your 2019 mucus transplant study -- though not one study in the US, where I live! I am wondering whether your study has yielded results. Anything published in any journal? Any information will be appreciated! We're all hopeful!
I’m Pat🙋. I have Allergic Fungal Rhinosinusitis. There is no known cure but it is felt it is an immunological response to fungus that we breath in the air.
I have had three surgeries in the past five years to clear my sinuses & help control my disease. I too have done special rinses. I am presently in the aPDT (blue light) study as all other treatments have failed. I hope to not just help myself but help others from the data that Dr.Javer & the team collect.
Dr.Javer’s commitment to us patients keeps me going in body, mind & soul. I hope to encourage all of us patients in our journey as you know some days are good & some are not.
I want to brainstorm with other patients to see how we can fund raise for research funds to continue these important studies. Any thoughts send them out!